There are few stories in life that tug so hard at your heartstrings that you not only compelled to share them, but also act upon them.
One of these stories is that of Sameer and Vinay. If you haven’t already heard some version of it, here’s a deck that you can browse through to get an understanding.
Today Jennifer is giving a keynote presentation with Nathan Waterhouse of OpenIDEO at STAN 2011. Since everyone can’t be there, we’re sharing the deck – you can find it here. Jennifer and Nathan’s story about the power of social technology is both heartwrenching and hopeful, and we’ve received numerous requests from people who want to get involved and spread the word about the shortage of bone marrow donors. Below you’ll find sample Facebook posts, Tweets, and an email that you can use to help us amplify our message. The students of 100K Cheeks, a group that was formed to put the message of the Dragonfly Effect into action, are on a mission to register 100,000 people into the bone marrow registry this year, but we can’t do it alone. We’re hoping you’ll help us advocate for widespread social change. Every single Facebook post, tweet and personal email gets us that much closer to our goal of spreading awareness and raising more donors.
Thank you so much for your help and support in helping us swab cheeks, save lives and spread the word.
The 100K Cheeks Team
Sample Facebook Posts:
Did you know? Each year 10,000 people are diagnosed with a disease that requires a bone marrow transplant. YOU could be the one to save a life – joining the bone marrow registry is fast, easy and painless. Check out more information from Stanford student group 100K Cheeks: http://on.fb.me/100kcheeksfb
MYTH: Donating bone marrow requires a painful and lengthy procedure. FACT: The majority of bone marrow donations today are performed via a method that’s similar to donating blood. And you get to watch TV the whole time! Get more facts: http://bit.ly/100kcheeks
What can you do with a cotton swab? Stanford student group 100K Cheeks can give you a few suggestions, including one that saves lives. http://bit.ly/swabstories
What can YOU do with a cotton swab? Student group @100KCheeks offers a few ideas, including one that saves lives http://bit.ly/swabstories
Joining the bone marrow registry is fast, easy & painless – all you need is a cheek swab! You can do it at home: http://bit.ly/swabacheek
Swab a cheek. Save a life. Join the marrow registry & help spread the word! Learn more and register at http://bit.ly/swabacheek
A Stanford student group is on a mission to register 100K people into the bone marrow registry – you can help! http://on.fb.me/100kcheeksfb
This email may be one of dozens that passes through your inbox today, but please take a moment to read it. Every year, approximately 10,000 people are diagnosed with a blood cancer that requires a bone marrow transplant. In 70% of cases doctors will not find a genetic match among the patient’s immediate family, and the patient must seek a bone marrow match on the National Marrow Registry. Although the registry is comprised of several million people, the chances of finding a genetic match are so rare that most patients find no existing donor is available. In those cases, a patient has no option but to wait and hope that the perfect person joins the registry within the next few weeks – a terrifying and helpless situation.
The outlook is particularly bleak for South Asian patients, whose chance of finding a match is a dismal 1 in 20,000. With those odds, they have a greater chance of being struck by lightning or attacked by a shark than find a life-saving bone marrow match.
The amazing news is we can all help. Joining the bone marrow registry is fast, easy, and painless – it only requires a simple cheek swab. In fact, you can even order a cheek swab kit online and complete it from the comfort of your own home by going here – http://bit.ly/swabacheek . The donation process is not scary either – if you are ever identified as a match (lucky you!) you will be asked to undergo a physical exam, and your doctor will determine the best way to collect a marrow sample for the patient in need. In the majority of cases, you’ll be asked to donate via PBSC, in a procedure that closely resembles donating blood.
A few hours of your time is all it takes to save someone’s life.
I recently learned of an initiative started by a group of Stanford students on a mission. Their goal is to add 100,000 new people to the national bone marrow registry this year, and they can’t do it alone. They’ve partnered with the Haas Center for Public Service at Stanford, as well as OpenIDEO to help amplify their message. But most importantly, they need compassionate individuals to listen and respond. I hope you are one of those people.